Lupus is
an autoimmune disease where the body attacks normal tissues. This happens when
the body produces antibodies against itself. There are two types of lupus:
systemic lupus erythematosus (SLE) and discoid lupus erythematosus (DLE). SLE
just as name implies is a systemic disease affecting many different parts of
the body.
DLE type
of lupus is a less serious disease that primarily affects the skin. While DLE
is not necessarily dangerous to overall health, it is a chronic skin disease.
Both types of lupus follow a pattern of periodic flare-ups alternating with
remission. Symptoms of lupus flares include fatigue, joint pain, stiffness and
swelling, butterfly rash, lesions on the skin, mouth sores, chest pain, memory
impairment and shortness of breath. Learning how to deal with these symptoms
can help to make you more comfortable during a lupus flare.
Get enough sleep. One
of the known symptoms of a lupus flare is fatigue. A person suffering from a
lupus flare needs adequate rest to overcome their symptoms and go about their
daily activities.
·
Try to
get at least eight hours of sleep at night. Get yourself into a routine by
going to bed and waking up at the same time each day.
·
Naps
during the day can also help to reduce fatigue.
Reduce sunlight exposure. Many lupus flares are triggered by sunlight exposure.
Therefore, it's important that you protect yourself from sunlight by wearing
sunglasses and using an umbrella to shield your skin from direct sunlight.
· Avoiding
direct sunlight and reducing sunlight exposure, as simple as it may seem, can
make a big difference in the frequency and severity of lupus flares.
· Also
remember to wear sunscreen with a sun protection factor of at least 55 before
going outside, even on cloudy days (harmful UV rays can penetrate the clouds).
·
Use sun
protection and go out in the sun only when absolutely necessary.
Prioritize your activities. During a flare, prioritize your activities, and scale back
on anything that doesn’t make the top of the list. Remember – this isn’t
permanent! This is just until your disease activity lessens and you are flare
free. Focus on today, and delegate what you can. You’d be surprised how many
people are willing to help, if you task them with something specific.
Try meditation. Stress
can lead to a lupus flare. Meditation can
be used as a technique to calm the body and mind. It is often used by people
suffering from illness to attain physical relaxation, mental calmness, and
psychological balance. Some evidence
suggests that meditation can help improve the quality of life for lupus
patients in particular. Mindfulness
meditation is a simple and effective way to begin a practice of daily
meditation.
·
Sit in
a comfortable position, whether in a chair, cross-legged, or kneeling.
·
Begin
to pay attention to your breathing. Your mind will eventually wander. When you
catch your mind wandering, bring your attention back to your own breathing.
·
Don’t
stop to dwell on or judge your thoughts.
·
Continue
this process for a short time, such as five minutes if you are trying it for
the first time. Repeat this practice frequently, at least once a day. As you
begin to practice mindfulness meditation regularly, you can gradually increase
the length of the sessions, if you desire.
Get regular moderate
exercise. Exercise is good for your physical health and it can
also help to control stress, which often causes flare-ups. Try to get 30 minutes of moderate exercise every day.
- · Some good exercises to try include walking, biking, swimming, or taking an aerobics class.
- · Choose something that you like doing and that is appropriate for your current fitness level.
Engage in activities that provide comfort. Lupus may become a very painful disease. However, there are a few ways to handle the pain and make your day more comfortable. These techniques can also help reduce stress, lessening the risk of a flare.
·
One of
these comfort measures is a good massage. A good massage can be very relaxing
and soothing, as it can help to relieve both joint pain and systemic pain.
· See a
massage therapist, perform
self-massage or ask a family member or friend to massage the
painful area for you.
·
Use
heat therapy. Another way to ease pain and promote comfort is by using heat.
For example, a hot shower or a hot bath can ease systemic pain. For localized
pain, a hot towel or a hot compress can be placed over the affected joint or
area.
·
Make
sure the hot compress or
hot towel does not burn the skin. Place a dry towel around the hot compress if
it is too hot.
·
Heat
helps to relieve pain by increasing the blood circulation at the site of the
pain.
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