Bruising ridiculously easily, constant cold hands and feet, aching joints, my ankles crack to the point where sometimes it aches so bad I cannot bear weight until it cracks, hips pop out sometimes, bad mouth ulcers, breathlessness, occasional chest pains (cant breath in all the way until it subsides) and had one out burst of what looked like eczema on the palms of my hands - was blistering and bleeding for around a month.
I started having blood tests last year at my old
doctor, they said it was anxiety - I do suffer with this but I don't have
anything on my mind that would make me ill to this extent, they made me have
blood tests and said I had high blood pressure too, which I was given beta
blockers and sedatives (I never took the sedatives as I don't think I need
them? sleeping isn’t the issue) my blood tests came back with a really low
white blood cell count, these tests were repeated for a year and I didn't get
anywhere.
When the rash on my hands started and I was told to basically just
put up with it I changed doctors. Having never suffered with it before I know
in myself it wasn't normal nor an allergic reaction as nothing had
changed.
At my new doctors I have undergone a 24 hour heart
monitor - this came back ok I think I am back in 2 months for the results (I don’t
get palpitations all the time so I wasn't worried) and the bloods I had done
when I changed he said came back ok but my B12 and Vitamin D levels were far
too low and I am on high doses of these.
I also had a medical at work and they made me ring a nurse straight away as my kidney function was quite bad, I did another at the doctors and they said this was ok (over the phone - haven't seen him yet). But my period was 2 weeks late and have since been spotting (I have never suffered with this before either? I could even tell you to the date and time I have always been that regular previously).
I am worried as because it’s a collection of symptoms
that I seem to have got used to and sort of got used to putting up with them even
though I know it’s not normal at 26 to feel like this when I eat pretty well
and I exercise regularly. I feel like it must be something auto-immune as I
have heard of similar symptoms.
I have since gone
Private, after the night sweats have increased; I get temperatures from month
to month as high as 39, and can never get in at my doctors when I am at my
worst.
I managed to 3 weeks ago,
and the eyrithrimicin he prescribed me made me so sick I ended up in hospital
on a drip.
I saw my GP as soon as I came out of hospital and
asked for a private referral, he said a rheumatologist would be best and I am
awaiting an extensive list of blood tests.
The main issue I am concerned with now is I have had this for 4 years, my symptoms "flare up" and i know if I have these bloods done tomorrow I feel ok at the minute so they won't be as bad as they previously have been, but when I have managed to get into my GP and have tests, and my ESR levels are high and kidney function is poor etc they just say it's a "viral infection" despite me telling them this happens on a monthly basis and it is getting worse.
I'm hoping the specialist
I am seeing will recognize my genuine frustration with feeling 102 at 26 years
old and help me finding something to help me. Especially since I'm pretty sure
my hair is thinning in areas too now.
I guess I am just worried that the specialist will see
my bloods and say it's a viral infection like all the others and I will be
stuck feeling like no one believes how crappy I feel...?
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